Posts about consumer-led research

NurtureNextGen research presented at HGSA 2026 

NurtureNextGen research was recently represented at the 49th Human Genetics Society of Australasia (HGSA) Annual Scientific Meeting in Christchurch, Aotearoa New Zealand. The conference brought[…]

Five people standing in front of the MDAA banner, smiling.

Co-Designing With Diverse Parent Voices: Our Workshop With MDAA

Towards the end of last year, our team recognised an important gap in the development of our project: we needed more diverse parent voices involved in[…]

Consumer advisory group strengthens NurtureNextGen 

NurtureNextGen is guided by a Consumer Advisory Group made up of ten parents who have direct experience supporting a child with a genetic neurodevelopmental condition. The[…]

“What does this mean for our future?”

Parents and researchers are working together to empower families navigating a genetic neurodevelopmental diagnosis with balanced and accurate information. When a paediatrician informed Elizabeth Callinan[…]

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