About NurtureNextGen
NurtureNextGen is a consumer-led research initiative focused on co-designing a digital tool to support families of children with genetic neurodevelopmental conditions.
Our goal is to provide balanced, evidence-based information about what the future might hold in a way that is clear, compassionate and practical.
Watch the video to learn more about why this research is needed and what motivated the development of NurtureNextGen.
Our research
NurtureNextGen has two core aims, with parents partnering with us throughout the research process.
Aim one
Work together with families and experts to create a trusted resource that helps share information about genetic neurodevelopmental conditions in a positive and supportive way.
Aim two
Explore how the resource works in real-world settings to make sure it’s practical and useful, and use what we learn to guide future research.
Multi-level co-design across our research
We embed co-design at every stage of NurtureNextGen
Parents as partners
Parents with lived experience have partnered with us in multiple ways, ensuring our resource reflects real needs and values.
Responding to families’ need
Our work builds on research we conducted with parents of children with genetic neurodevelopmental conditions, highlighting the need for clear, balanced prognostic information.
Co-design expertise
Our team brings extensive expertise in co-design research, and our investigators, including parents, health professionals, consumer representatives, and academics, have meaningfully contributed to planning, designing, and conducting the study.
Creative co-design with parents
We use creative arts-based methods such as body mapping and object inquiry to help participants express complex and emotional experiences in ways that go beyond words.
Our Partners
We have partnered with grassroots organisations including advocacy and genetic support groups, as
well as peak body organisations.
