Co-Designing With Diverse Parent Voices: Our Workshop With MDAA
Towards the end of last year, our team recognised an important gap in the development of our project: we needed more diverse parent voices involved in[…]
Consumer advisory group strengthens NurtureNextGen
NurtureNextGen is guided by a Consumer Advisory Group made up of ten parents who have direct experience supporting a child with a genetic neurodevelopmental condition. The[…]
“What does this mean for our future?”
Parents and researchers are working together to empower families navigating a genetic neurodevelopmental diagnosis with balanced and accurate information. When a paediatrician informed Elizabeth Callinan[…]